Gabriel's Life

In March of 2007 during my routine ultrasound, I found out that my baby girl had a very severe form of Hydrocephalus. Her head was so large that the technician couldn’t even measure the full circumference of her head and obviously I was scared. Her third ventricle was mostly blocked causing more and more fluid to build inside her small brain. The perinatologist we went to see told us that she may not make it and that if she did,”

For a new mother there is a rush of excitement and worry that comes when you are about to give birth to your child. Being 16 increased that worry on me even more. So when I was rushed into an emergency C-section after 21 hours of labor every possible worry had ran through my mind. The only thing I hadnt thought of was Hydrocephalus. I awoke after the surgery in the recovery room and looked to my right for my”

I am a mother of 11 months old beautiful boy named Yehia. I am an assistant lecturer of radiodiagnosis and I susspected my baby’s case while being pregnant yet everybody told me everything is O.K. we diagnosed the case when yehia was 1 month old when I suspected his condition by having a bulging fontanell. he performed a shunt operation and 2 weeks later he was diagnosed to have shunt malfunction and performed 3rd ventriculostomy in which he was diagnosed”

I was born on August 8, 1973 with Congential Toxoplasmosis. During the summer of 1992, I lost my right eye completely to the Toxoplasmosis condition. While attending a school for the blind in the San Francisco/Oakland area from September 1992 through April 1993, I was learning how to read and write Braille and other Independent skills needed for the blind and visually impaired. From November 1992 through March 1993, I was constantly in and out of the Naval Hospital in”

Even with the numerous scars on my chest, abdomen, and scalp, it’s often easy to forget that I was diagnosed with hydrocephalus and received the first of 24 shunts over 30 years ago just before turning. I was a science and math whiz who had burned through the AP curriculum in two years of high school; so, at not yet 15 I was awaiting acceptance to an undergraduate program at Rice University when a flu-like illness came upon me. Nausea”

In some ways, it feels like Gabriel was never really here. He always seemed to be half-way to another place. But I know he was, for I miss him now. The Good Times When I was seven months pregnant a doctor told me I would be lucky if Gabriel lived to be born. That prognosis did not sound very lucky to me, and the words sent me into three weeks of the darkest gloom I have ever experienced. Despite the”

I was born 27 weeks Premature at 2 lbs 4 oz . I had underdeveloped lungs and a hole in my heart.(patent Ductus Arteriosus ) along with E-coli Meningitis (the cause of my hydrocephalus ) since than I have had about 10 or 11 shunt surgeries, the very last one. I was a senior in high school back in 99 and I have not had another sugury sinc than….It has been amost 10 years and no malfuctions !!!!

I live in St Louis County and had been having headaches and memory problems for over ten years. Doctors & psychiatrists diagnosed me with bipolar disorder but the medicines always made me feel worse. Finally this year I found a doctor who gave me a CT scan & MRI and he found out that I had hydrocephalus. I had endoscopic third ventriculosity operation on May 10th. I started to feel better until the weather got bad and now the headaches”

Hello my name is Lisa I am 36yr’s old and have had hydrocephalus since I was born,I was born 9 1/2 weeks prem &@41/2 months I had my 1st operation to put a shunt in then I recall the next few op’s were @18mths,2yrs,4yrs and the rest I don’t remember until 10 1/2 then the last to date was @17yr’s.Ihave had hiccups along the way with learning,headaches and now 3children &1onthe way,cause I can’t have any hard meds with pregnancy”

My daughter Katelyn was born on October 9, 2007 at 36 weeks & weighed 5 pounds, 8 ounces. She was such a beautiful baby with olive colored skin and jet black hair. She struggled a bit to breathe at first and couldn’t maintain a warm enough body temperature, but the hospital kept her in a warmer in our room. The first few weeks were a struggle, something just didn’t seem right, but everything came back normal until she was 12″