Comments for Gabriel's Life http://gabrielslife.org Gabriel's Life Community Blog Mon, 14 May 2012 14:06:58 +0000 hourly 1 http://wordpress.org/?v=3.0.1 Comment on New research articles debate ETV effectiveness by kathrynecheng http://gabrielslife.org/2009/11/23/new-research-articles-debate-etv-effectiveness/#comment-17490 kathrynecheng Mon, 14 May 2012 14:06:58 +0000 http://gabrielslife.org/blog/2009/11/23/new-research-articles-debate-etv-effectiveness/#comment-17490 Why don't neurosurgeons implant adjustable valves into children with hydrocephalus? I was told by a neurosurgeon that pediatric neurosurgeons implant non-adjustable shunts into children because they don't want to be pestered by the parents of the children--the assumption is that parents of children with hydrocephalus would constantly demand valve adjustments, so the surgeons implant nonadjustable shunts. I was diagnosed with hydrocephalus as an adult (although they suspect that I've had it since childhood). I have an adjustable shunt, and would want the same for my child if he or she had hydrocephalus. Any truth to what I was told? Why don’t neurosurgeons implant adjustable valves into children with hydrocephalus? I was told by a neurosurgeon that pediatric neurosurgeons implant non-adjustable shunts into children because they don’t want to be pestered by the parents of the children–the assumption is that parents of children with hydrocephalus would constantly demand valve adjustments, so the surgeons implant nonadjustable shunts. I was diagnosed with hydrocephalus as an adult (although they suspect that I’ve had it since childhood). I have an adjustable shunt, and would want the same for my child if he or she had hydrocephalus. Any truth to what I was told?

]]> Comment on Headlines: School district sues child hydro patient for truancy by Ana http://gabrielslife.org/2010/06/24/headlines-school-district-sues-child-hydro-patient-for-truancy/#comment-17446 Ana Fri, 27 Apr 2012 00:49:25 +0000 http://gabrielslife.org/blog/2010/06/24/headlines-school-district-sues-child-hydro-patient-for-truancy/#comment-17446 This is rediculous! Lucky I went to cheap public schools that accepted my notes all through elementary school. This is rediculous! Lucky I went to cheap public schools that accepted my notes all through elementary school.

]]> Comment on Headlines: School district sues child hydro patient for truancy by kmn9053 http://gabrielslife.org/2010/06/24/headlines-school-district-sues-child-hydro-patient-for-truancy/#comment-17192 kmn9053 Fri, 06 Jan 2012 16:05:00 +0000 http://gabrielslife.org/blog/2010/06/24/headlines-school-district-sues-child-hydro-patient-for-truancy/#comment-17192 Same thing happened to my child. We hired a lawyer and sued the district for discrimination under Americans with Disabilities Act. Turns out the district was not providing the education that our child needed to receive an appropriate education. She needed a partially home-based program to meet her needs due to her medical condition. School districts use the truancy complaint to avoid their legal obligation. Same thing happened to my child. We hired a lawyer and sued the district for discrimination under Americans with Disabilities Act. Turns out the district was not providing the education that our child needed to receive an appropriate education. She needed a partially home-based program to meet her needs due to her medical condition. School districts use the truancy complaint to avoid their legal obligation.

]]> Comment on Young hydro survivor inspires family, Portland by Kate Wilber http://gabrielslife.org/2010/06/16/young-hydro-survivor-inspires-family-portland/#comment-16875 Kate Wilber Sun, 09 Oct 2011 19:53:23 +0000 http://gabrielslife.org/blog/2010/06/16/young-hydro-survivor-inspires-family-portland/#comment-16875 Hi, My name is Kate Wilber and my father has had Hydrocephalus for the last 36 years. He has had 82 neurosurgeries and is still struggling today with his condition. I am interested in organizing a walk in my local area in honor of my Dad and to help raise funds for research for Hydrocephalus. I would love any information you could give me on how to get started with organizing a walk. Thanks and I look forward to speaking with you soon. Kate Wilber Milford, Delaware Hi,
My name is Kate Wilber and my father has had Hydrocephalus for the last 36 years. He has had 82 neurosurgeries and is still struggling today with his condition. I am interested in organizing a walk in my local area in honor of my Dad and to help raise funds for research for Hydrocephalus. I would love any information you could give me on how to get started with organizing a walk.
Thanks and I look forward to speaking with you soon.
Kate Wilber
Milford, Delaware

]]> Comment on Growing into adolescence with hydro by kathie kopp http://gabrielslife.org/2010/07/12/growing-into-adolescence-with-hydro/#comment-16860 kathie kopp Thu, 29 Sep 2011 22:54:22 +0000 http://gabrielslife.org/blog/2010/07/12/growing-into-adolescence-with-hydro/#comment-16860 Dr. Rekate is my son's Dr. I was so excited to see this powerpoint. I can't wait to show it to my son. Dr. Rekate is a no nonsense kind of guy, so it makes sense his powerpoint on this subject would be straight forward. My son is 17 so it is definitely time to gather this type of information. Very helpful. Thank you Dr. Rekate is my son’s Dr. I was so excited to see this powerpoint. I can’t wait to show it to my son. Dr. Rekate is a no nonsense kind of guy, so it makes sense his powerpoint on this subject would be straight forward. My son is 17 so it is definitely time to gather this type of information. Very helpful. Thank you

]]> Comment on Gabriel’s Life to host video interviews to answer your questions by gavyne http://gabrielslife.org/2010/01/28/gabriels-life-to-host-video-interviews-to-answer-your-questions/#comment-16702 gavyne Thu, 07 Jul 2011 14:19:49 +0000 http://gabrielslife.org/blog/2010/01/28/gabriels-life-to-host-video-interviews-to-answer-your-questions/#comment-16702 I will really appreciate this service.Am from Kenya and access to information about hydrocephalus is limited.I would like to help my son grow up well despite being affected with hydro from birth.Thanks. I will really appreciate this service.Am from Kenya and access to information about hydrocephalus is limited.I would like to help my son grow up well despite being affected with hydro from birth.Thanks.

]]> Comment on Chicago researchers hope to better monitor brain fluids by sandraj80 http://gabrielslife.org/2010/08/30/chicago-researchers-hope-to-better-monitor-brain-fluids/#comment-16465 sandraj80 Thu, 21 Apr 2011 06:34:08 +0000 http://gabrielslife.org/?p=2357#comment-16465 This is great! I have a soon to be 5 year old daughter that has hydrocephalus. She is my life! There is not a day that goes by that I don't worry about her shunt. Maybe one day, this can be a thing of the past. This is great! I have a soon to be 5 year old daughter that has hydrocephalus. She is my life! There is not a day that goes by that I don’t worry about her shunt. Maybe one day, this can be a thing of the past.

]]> Comment on Caring for family, teenager still excels in school by Stacy http://gabrielslife.org/2010/09/01/caring-for-family-teenager-still-excels-in-school/#comment-16410 Stacy Thu, 24 Mar 2011 02:43:18 +0000 http://gabrielslife.org/?p=2365#comment-16410 What an inspiring story for anyone!! What an inspiring story for anyone!!

]]> Comment on Triathlon challenge for man who has had 29 brain operations by John http://gabrielslife.org/2008/05/14/triathlon-challenge-for-man-who-has-had-29-brain-operations/#comment-16302 John Fri, 07 Jan 2011 22:05:10 +0000 http://gabrielslife.org/blog/2008/05/14/triathlon-challenge-for-man-who-has-had-29-brain-operations/#comment-16302 What an inspiration. As a shunt patient for 49 years, my daily running has kept me going. Although I have gone through 132 shunt revisions .Each time I am back home , I most look forward to being back on the road running. My son Sean has been named this year- All American in the Sprint Triathlon. He runs with my name on his arms , next to his number. After winning the New Jersey State Triathalon he now wants to participate with friends and family to raise funds for hydrocephalus. Thanks forthe inspiration Let us know how you do John What an inspiration. As a shunt patient for 49 years, my daily running has kept me going. Although I have gone through 132 shunt revisions .Each time I am back home , I most look forward to being back on the road running.
My son Sean has been named this year- All American in the Sprint Triathlon. He runs with my name on his arms , next to his number. After winning the New Jersey State Triathalon he now wants to participate with friends and family to raise funds for hydrocephalus.

Thanks forthe inspiration
Let us know how you do
John

]]> Comment on Reflecting spring, new hope and valued efforts blossom with hydro conferences by Amber Rowen http://gabrielslife.org/2010/04/08/reflecting-spring-new-hope-and-valued-efforts-blossom-with-hydro-conferences/#comment-16287 Amber Rowen Tue, 14 Dec 2010 02:03:34 +0000 http://gabrielslife.org/blog/2010/04/08/reflecting-spring-new-hope-and-valued-efforts-blossom-with-hydro-conferences/#comment-16287 The US based Hydrocephalus Association, holds their national conferences every two years. You missed the June 2010 Conference in Cleveland, Ohio. Stay tuned to their website for the annoucement of where in US the next Conference will be. hydroassoc.org The US based Hydrocephalus Association, holds their national conferences every two years. You missed the June 2010 Conference in Cleveland, Ohio. Stay tuned to their website for the annoucement of where in US the next Conference will be. hydroassoc.org

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